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A distraught mother was left devastated after doctors misdiagnosed her daughter’s rare tumour as something less serious, forcing the family to endure an agonising wait for a definitive diagnosis.
May 2021, Lejla Evans from Wales After discovering a small lump on her three-year-old daughter Nancy Alice’s toe, she took her to see a doctor. The doctor advised Nancy’s lump was just a wart and assured her it was “nothing to worry about.”
However, as the lump continued to grow in size over the following months, Laila became increasingly concerned, and in June 2022, another doctor told the family it appeared to be a benign cyst, The Mirror reported.
“The doctor referred us to a specialist at Bangor Hospital and said it was benign. Cyst There was no reason to worry. He said they could remove it or keep it and he would monitor the situation. I told them I wanted it removed and tested. I had no idea what it was, it just kept getting bigger,” Lejla said.
In 2023, young Nance underwent surgery to remove the tumor, and after six weeks of agonizing wait, the family finally got an answer.
Doctors diagnosed the girl with desmoid fibromatosis (DF), a rare intermediate type of fibromatosis. Tumor soft tissue, divided between noncancerous and cancerous. DF is not cancerous in nature but is considered a sarcoma, a group of rare cancers that form in bone or soft tissue.
Leila’s light came on:
“Everything was spinning in my head – what if my daughter got cancer? I wanted the doctors to listen to me. It would be terrible for the whole family. She was my child and she was only six years old at the time.
When they received the bad news, Lejla and her family turned to Sarcoma UK for much-needed information and support.
“When we got the diagnosis, the doctor told us that if we were to Google it, we had to use the Sarcoma UK website, so we did that. Within a week of the diagnosis, we got a lot of information about it from Sarcoma UK. They helped us follow up with the exams and told us what we could do as a family to help her,” Lejla added.
So, inspired by Nancy’s journey, the determined family set out on a five-hour climb up Mount Snowdon on August 17, raising more than £1,300 for Sarcoma UK.
“I’d never been to Snowdon before so if I was going it had to be for a good cause and what better than to raise money for Sarcoma UK? It was a great day. It was fantastic. Everything I did was to work for Nancy and we were so happy because we raised so much money,” said Nancy.
(Telegraf.rs)
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